eHealth action plan takes a twin-track approach: maximising new information and
communication technologies in the health sector and integrating a range of
eHealth policies and activities. The HealthGrids Knowledge Base fits into the
plan by providing a framework for exchanging best practices and experience, and
enables common approaches to shared problems to be developed over time. The
supporting SHARE project, with a budget of €1,17 million, is set to run until
the end of 2007.
emergence of Grid technology has opened new perspectives in healthcare, as the
benefits of such technology are particularly evident in health issues requiring
large-scale information-gathering and processing operations. National
breast-screening programmes or bio-banks are good examples.
HealthGrids Knowledge Base will, therefore, be used to roadmap the challenges
to come. It will act as a basis for improving coordination amongst funding
bodies, health policy-makers and leaders of Grid initiatives, avoiding
legislative barriers. The Base will develop a comprehensive compendium of
national and EU initiatives including an analysis of strengths, weaknesses and
gaps at EU level. It will also identify common interests, co-operation
incentives and collaboration among the funding authorities, to facilitate
pooling of results, best practice and evaluation methods, as well as a more
coherent approach towards standardisation and international collaboration.
sum up, the project will develop a detailed European R&D roadmap to guide
and promote EU-wide uptake of HealthGrid technologies and applications into
health research, and into healthcare service provision.
the heading of Objectives we see this:
To define a
complementary and integrated roadmap for e-Health RTD policy relating to Grid
deployment, as a basis for improving coordination amongst funding bodies,
health policy makers and leaders of Grid initiatives, avoiding legislative
the official line, and on the face of it, has some benefits as described,
although I am seriously concerned that an unelected body openly states that it is trying
to avoid legislative barriers..
When we look at the Share link
above, and move into Deliverables, we see a set of Leads and monthly
deliverables. We are not able to see any
of the quarterly or the annual report, nor are we able to see item deliverable D2.3 Report on and improvement of plan for
using & disseminating knowledge.
This is where it
begins to sound like there is something about the dissemination of knowledge other
than the official objectives. Why are the reports not available to the public.
D2.4 Final plan for using & disseminating
knowledge, is another one for the future, but just what knowledge is to be
disseminated and how is it to be used?.
If it is personal patient data, if it is for research, such as the Bio
industry has already indicated that they would like access to, then explicit
safeguards need to be put in place.
As one commenter
has already stated, and this is a view that I believe needs to be enshrined in
law, both for this Healthcare exercise and for ID cards and ePassports, is
First let us
establish ownership. I own my identity. I claim exclusive cultural, biological,
and intellectual rights to it. If I must relinquish exclusivity over certain
pertinent and relevant details of my identity in order for the government to
establish that I am eligible for NHS treatment, driver’s licence, a passport,
etc., then I am happy to do so. But that’s as far as I am likely to go.
I strongly object to my details – whether
taken with my consent or harvested – being passed to foreign governments.
why have the UK government told us that
these NHS projects are NuLab initiatives. Why have they not explained to the public the
extent and scope of the European objectives, and exactly how our patient
records are going to be shared. Why have they lied to us about the data never
leaving the NHS.
is obvious that this entire Government is psychologically flawed, not just the
Chancellor, and state pathological lying is embedded into the ideology.
Whatever they tell you today, you can be sure it will be used for something